Understanding the experiences of support parents/guardian’s of children with dystonia receive.

We would like to gain a better understanding of the lives of carers who have children with dystonia, especially about what support carers receive and what further support might be needed. 

This study evolves into two parts: this online survey and an online interview where we would go into more details about the experience and the issues that have emerged from the survey. Your participation to either of these study parts is entirely voluntary. 

Please find the participant information sheet for your convenience

Participant information sheet questionnaire.pdf

Should you have any questions relating to this research project, you may contact me during normal working hours:

Anne Haddick

haddicka@cardiff.ac.uk

07596102862

Thank you for considering to take part in this research project. If you decide to participate, you will be given a copy of the Participant Information Sheet and a signed consent form to keep for your records.