You are being invited to provide feedback on work that is taking place across Wales to understand how bowel cancer services can be improved and how acceptable new approaches to care might be to those patients with bowel cancer.
This project is led by Professor Jared Torkington, a clinician based in Cardiff who wants to learn how we can improve bowel cancer care in Wales. The work will be carried out by Cedar, an NHS Research Group, and is funded by Moondance Cancer Initiative which is a Welsh non-profit organisation. They fund projects which aim to make Wales a world-leader in cancer survival. Bowel Cancer UK are the UK’s leading bowel cancer charity and they are supporting the project by sharing the survey on their website.
What is the purpose of this?
Speaking to people who have experience of bowel cancer care in Wales can help us understand what works well and what we can do to make it better.
Why have I been asked?
We want to talk a range of patients and families of patients who have received care from bowel cancer treatment teams across Wales. By talking to you we can try to understand how bowel cancer services can be improved from your point of view. It is important that we talk to a range of different people, and we would like to know about your experience and whether it was good or bad.
What will I have to do?
We are asking you to complete this survey about the care you have received and how we can improve the services we provide. We would also like some people to take part in interviews or focus groups so we can learn more about your thoughts on bowel cancer care. The survey and interviews are available in English and in Welsh. The focus groups may be run in English or Welsh depending on participation. If you are interested in taking part in these interviews or focus groups, when you fill in the survey you can leave your name and contact details for us to get in touch, this means that we will know what your answers to the questions have been. Your survey response will be anonymous unless you provide your name and contact details in the survey itself.
What will happen to the information I give?
The information from your survey will be used with the feedback from others to help us understand more about peoples experience of bowel cancer care in Wales. This will help us to improve future services.
Can I access support without taking part?
If you would like some support at any point in your bowel cancer journey, you can access this from Bowel Cancer UK by visiting their website at www.bowelcanceruk.org.uk/how-we-can-help/support-for-you/. If you decide to complete the survey, you can also choose to have your contact details passed on to Bowel Cancer UK and they will contact you to offer support and advice.
Will my taking part be confidential and will my personal details be secure?
All information which you provide will be confidential. The handling and storage of personal information will be covered by strict NHS data protection standards. We will aim to use the information we get from the surveys to write a report which will be publicly available for anyone can read. Because the surveys are anonymous, no one reading the report will be able to identify you.
What will happen if I change my mind?
We would like to emphasise that it is completely voluntary to take part. If you provide your contact details and agree to take part in an interview or focus group, but later change your mind, you are able to withdraw at any time. If you do not wish to participate, it will not affect the standard of care you receive or your legal rights as a patient.
If you wish to contact us to ask any question, please contact:
Kathleen Withers at Cedar on 02920 744771 or via Kathleen.firstname.lastname@example.org
Your help would be greatly appreciated by us, but it is not compulsory.
Thank you for taking the time to read this information