A survey to scope Bereavement services in Wales

Part 1: About the survey

Background: Bereavement is associated with increased risks to mental and physical health. Appropriate support following bereavement can reduce these challenges. Bereavement care involves the provision of services to  help an individual cope practically and emotionally following the loss of a loved one. In Wales, the government acknowledges that good care at the end of life, including sudden deaths, ought to include bereavement support for both adults and children to facilitate a healthy grieving process. To that end it is important to understand the different types of bereavement service available in each locality, to ensure an integrated mix of support services for all groups of bereaved people, and to provide accurate information on what support is available.

Purpose: The Welsh government has funded this project to produce a map of the structured bereavement support which is offered in different areas within Wales. The findings from this survey will inform that process. 

We are grateful for your time in completing the questionnaire as the accuracy of the survey in terms of breadth and depth of service provision is dependent on your engagement.

Part 2: Data Protection

Before you decide whether to consent to participate, please read through this page:

Voluntary participation: Participation in this survey is voluntary, and you may choose not to answer some or any of the survey questions. If you decide to withdraw at any stage, you do not have to give a reason why.

Confidentiality: The full survey results will only be seen by the project staff who are undertaking this survey. Any information we publish that might identify you, or others, will be anonymised.

Data protection and usage: All data collected in this survey will be held securely at Cardiff University in accordance with the General Data Protection Regulations (GDPR; EU 2016/679). For more information on data protection, please follow the link: General Data Protection Regulation (GDPR; EU 2016/679). Cookies, personal data stored by your web browser, are not used in this survey.

By participating in this survey, you are agreeing that your survey responses and anonymised extracts of text may be included in future reports, professional journals and future research. The results will be appropriately disseminated through the Welsh government and may be published in peer-reviewed journals, secondary analysis of the data, presentation in national and international conferences, or use for educational purposes. Your data will be kept securely for 15 years after the scoping exercise is completed in line with Cardiff University policies in addition to GDPR.

Risks and benefits: When using the internet, there can be a risk of compromising privacy, confidentiality and/or anonymity. We have taken the precaution of using a secure platform to conduct the survey in order to minimise these risks. By completing this survey, you are helping the Welsh government establish a map of the bereavement support available in different locations in Wales.

Contact information: If you have any concerns or questions relating to this questionnaire, please contact Dr. Cynthia Ochieng, Research Associate at OchiengC@cardiff.ac.uk or 02920 687211. Additionally, if you have a complaint or other queries, contact Professor Anthony Byrne on 02920 687175 or mariecuriecentre@cardiff.ac.uk, Marie Curie Palliative Care Research Centre, Cardiff University, 8th Floor Neuadd Meirionnydd, Heath Park, Cardiff, CF14 4YS.

This study is funded by the Welsh Government.